Do you belong to a Lyme support group? Does it give you what you need? There are a number of really good ones in Massachusetts I go to a support group and talk at a number of them to share self care information. It can be challenging to find help through the standard outlets, pooling information in the support group helps everyone.
A support group is just a bunch of folks who meet regularly who have something in common, anything from being a nursing mom to Lyme disease. They meet to listen to experts, discuss their experiences, learn, find community and provide emotional support for one another.
4 Big Things I want from my Lyme Support Group
- Treatment Strategy and ideas – Evolving Treatment is critical for people who struggle with tick borne illness. Learning about the treatments that are available will help you help your doctors to get the best result. Always work with your health care team to understand and implement your best treatment options.
- Symptom Management – Within the context of discussion you start to understand the range of symptoms and signs that Lyme brings to your body. I know before my diagnosis and treatment, I and my doctors were assigning symptoms to age and weight, that had more to do with infectious agents in my body than anything else. How about you?
- Resource Sharing – It is very helpful to share resources, local Lyme literate physicians, herbalists, chiropractors, and supportive treatments like Ondamed. Many people work their way through multiple doctors before they find one who can help them. Sharing resources can really leverage the community getting the treatment they need more quickly.
- Reality Check – Sometimes you just need to know that you are not crazy for taking 60 pills a day. Other people are on this journey with you. They understand the pain and fatigue that is part of your daily life in a way that your family or spouse may not.
Share what you get from your support group in the comments below
Mass Based Lyme Support Groups
“Was it you or I who stumbled first? It does not matter. The one of us who finds the strength to get up first, must help the other.”
– Vera Narzrian, The Perpetual Calendar of Inspiration
All of these groups were started by someone strong enough to reach out and build a community as part of their healing journey. They anchor the group, maintain the structure and plug in to help the members of the group as well as themselves. The focus on education and support. This is a huge blessing for the Lyme community nationwide.
I feel really blessed that there is a support network to plug into in Massachusetts, which is positive and engaging. Here are some of the groups that I know of locally. There are groups in place in many Lyme endemic areas.
Here are 3 of my favorite local support groups.
Reach out and find or start a local Lyme support group that is designed to help, get involved to support healing yourself and your community.
The information provided on this website is not a substitute for professional medical care, treatment or advice. All the material here is for information purposes only. Always share strategy and work with your health care team.